Thvedt & Martin | 12-23
John Thvedt & Christine Martin
Abstract
This article delves into the synergy between trauma-informed care and positive supports, framed within a wellness perspective. Trauma-informed care emphasizes creating healing environments, while positive supports focus on strengths and resilience. By merging these approaches, practitioners can bolster interventions for trauma-affected individuals. Key principles and strategies for implementing a wellness-oriented approach to trauma-informed care are discussed, emphasizing collaboration, empowerment, and self-care for both providers and recipients.
Keywords: Trauma-informed care, positive supports, wellness, empowerment, collaboration, self-care, mindfulness, polyvagal theory.
Temple Grandin has expressed how emotions tie to specific places, highlighting the significant impact of environments on individuals, especially those with autism and/or individuals with intellectual and developmental disabilities (IDD). Most of us have fond memories of happy times in a positive environment. Difficult events are also remembered as a picture of the place and time. People, places, and things create our life stories. Whether places are remembered with happy or sad associations, they generally do not impact our daily lives. However, for the significant number of individuals with autism and/or IDD who have a trauma history, the physical environment can significantly impact their reactions, motivations, and fears, causing acting out behavior. These incidents often lead the individual and those who support and care for them into confusion and despair.
Introduction
Throughout the history of the human service system in our efforts to help, the place of service and the environment has been a significant factor. When we sought to treat and to protect people with disabilities, they were placed in an institution. When we believed that we needed to train people in production, workshops were created. As we learned more, we embraced the concepts of normalization, inclusion, and individual rights, as community living arrangements were developed. As we now begin to understand the significant impact of trauma on people’s lives, and the crisis in our workforce and communities, we should consider the need to create inclusive environments that will support peace and reduce potential triggers or conditions that may cause re-traumatization.
Trauma victims experience triggering memories in certain places, leading to disruptive behaviors. While Functional Behavior Analysis (FBA) dominates as best practice for autism and IDD, the analysis becomes more complex when seeking to understand the problematic behavior of an individual who has experienced trauma. We need to acknowledge that a behavior that is a function of post-traumatic stress may serve NO useful function (other than survival) for the person. It may be a visceral reaction based on an altered stress-response system, leading to dysregulation of processes such as heart rate variability, digestion, and immune function (Dale, et.al. 2022).
When teaching individuals replacement skills to manage triggered responses, wellness and mindfulness approaches have emerged as complementary, strength-based, positive supports. The concept of "Setting Events," frequently used in behavioral psychology, refers to situational factors that can influence behavior. People can be triggered by places, sounds, and odors. These associations with environments often trigger a "flight or fight" response. As we look to support people who have experienced so much trauma in their lives, it is vitally important that we create environments where setting events are identified and addressed/reduced as much as possible.
Polyvagal Theory emphasizes the physiological aspect of trauma healing, suggesting that safety cues are pivotal in mitigating trauma's impact. Safety, in this context, isn't just the absence of threat, but encompasses a sense of safety detected through positive social cues. Additionally, the theory underscores how trauma alters physiological responses, emphasizing the importance of creating safe, supportive environments.
Mindfulness-based practices represent a promising approach for addressing aggressive and destructive behaviors in individuals with an intellectual disability and autism (ID/A). These interventions not only reduce challenging behaviors, but also significantly enhance the quality of life, offering a holistic alternative to traditional treatments. Mindfulness and acceptance training programs can significantly improve the quality of life for individuals with developmental disabilities and their families (Hastings, R., & Manikam, R. 2013). Mindfulness is “the awareness that emerges through paying attention on purpose, in the present moment, and nonjudgmentally, to the unfolding of experience moment by moment” (Kabat-Zinn,2003).
Resilience, vital in navigating life's challenges, is nurtured through wellness practices. Acknowledgement that supporters may have a trauma history is important when attempting to “support the supporters.” Direct care providers need resources to prioritize self-care so that they can maintain the quality of service they provide. Trauma informed care includes the need for shared wellness for all stakeholders.
Ultimately, the goal of supporting individuals with ID/A is to enhance their well-being while recognizing and addressing the impact of trauma on both individuals and supporters. This approach emphasizes understanding environmental factors and psychological dynamics for all involved parties. Shared Wellness is an example of how person, place, and relationships are served, resulting from the practical integration of trauma informed care, behavior analysis, mindfulness, and polyvagal theory. Shared Wellness, a project under the umbrella of Shared Support South (SSS), is located in Hatfield, Montgomery County. Shared Wellness provides essential services to individuals with intellectual disabilities (ID) and extends its reach to various community populations facing challenges.
Principles of a Wellness-Oriented Approach to Trauma-Informed Care:
The core principles included in the Shared Wellness philosophy include:
1. Safety and Trustworthiness:
- Trauma-informed care emphasizes the creation of safe and trustworthy environments where individuals feel physically and emotionally secure. Trust is built through honesty and transparency between individuals, supporters, families, and stakeholders.
2. Self-Care and Self-Regulation:
- Meaningful social connections and predictable environments aid in self-regulation, crucial for trauma survivors.
3. Empowerment:
- Recognizing individuals as experts in their experiences, fostering autonomy, and cultivating meaningful relationships.
4. Collaboration:
- Shared Wellness serves as a hub for community engagement and peer support, offering opportunities for social connection, mutual aid, and collective healing. By fostering a sense of belonging and solidarity among individuals affected by trauma, one can combat feelings of isolation and promote social connectedness, resilience, and recovery. Also, this provides individuals with ID/A support to expand their connections and relationships into their communities.
5. Holistic Wellness:
- Addressing physical, emotional, social, and spiritual well-being comprehensively.
6. Mindfulness:
- Providing present oriented activities, events, and thoughtful interaction.
7. Peer Support:
- Providing opportunities, peer support, and mutual self-care.
8. Historic Issues:
- Addressing and acknowledging historical trauma regarding gender, race, culture, sexual orientation, ethnicity, age, ability, etc.
Strategies for Implementation:
The center is dedicated to wellness approaches that can have a transformative impact on trauma-informed care by providing a supportive environment that prioritizes healing, resilience, and holistic well-being. Shared Wellness serves as a safe and empowering space where individuals affected by trauma can access comprehensive services and supports tailored to their unique needs.
1. Safe and Supportive Environment:
- The physical design and atmosphere of the wellness center plays a critical role in promoting feelings of safety, comfort, and trust among individuals who have experienced trauma. By creating welcoming spaces that emphasize peaceful colors, soothing sounds, and other pleasing sensory enhancements, the center can help mitigate potential triggers and promote a sense of security for those seeking care.
- Safety and trust are also important. Trauma-informed care emphasizes the creation of safe and trustworthy environments where individuals feel physically and emotionally secure. Polyvagal theory emphasizes the importance of creating acoustically soothing environments and activities. Shared Wellness provides many opportunities such as humming, playing Tibetan bowls, and soundtracks of peaceful music.
- The tranquil spa-like environment, set within 12 acres of beautiful, wooded surroundings, fields, and a pond, serves as the backdrop for our mission to promote well-being, mindfulness, and self-care for those we serve and for those who provide the services.
2. Integrated Services:
- Shared Wellness places an emphasis on the bio-psycho-social treatment approach through the coordination of services that address the multifaceted needs of individuals affected by trauma. These services include mental health counseling, nursing care, substance abuse treatment, and peer-led activities. To enhance collaboration with behavioral health resources, SSS has formed partnerships with psychiatric providers for on-site treatment at Shared Wellness. This approach encourages collaboration and positive associations for the individual in a comfortable, supportive environment. Mindfulness strategies are integrated into therapy and medication management sessions.
3. Strengths-Based Approach:
- Shared Wellness embraces a strengths-based approach that honors individuals' resilience, coping strategies, and personal strengths. Rather than focusing solely on deficits and pathology, trauma-informed care within the context of Shared Wellness emphasizes individuals' assets, resources, and capacity for growth and recovery. This approach promotes empowerment, self-efficacy, and collaboration, enabling individuals to actively participate in their healing journey.
4. Community Engagement and Peer Support:
- Shared Wellness serves as a hub for community engagement and peer support, offering opportunities for social connection, mutual aid, and collective healing. By fostering a sense of belonging and solidarity among individuals affected by trauma, one can combat feelings of isolation and promote social connectedness, resilience, and recovery. Also, this provides individuals with ID/A support to expand their connections and relationships into their communities.
5. Holistic Wellness Programming:
- In addition to traditional clinical services, Shared Wellness offers a variety of holistic wellness programming that addresses the physical, emotional, social, and spiritual dimensions of well-being. This may include mindfulness practices, yoga, art therapy, nutrition education, and stress management workshops, among other activities. By incorporating holistic approaches to wellness, the center can support individuals in cultivating self-care practices and coping skills that promote overall health and resilience.
An example schedule for an individual would be the following:
- 10:00 AM - 10:30 AM: Mindfulness meditation (e.g., sound, guided, breathwork, etc.), followed by juice made by the participants.
- 10:30 AM - 11:00 AM: A group on social skills, nutrition, art, movement, or physical activity.
-11:00 AM - 1:00 PM: Community advocacy, Shared Kindness Projects, and Individual Volunteerism.
- 1:00 PM - 4:00 PM: 1:1 mindfulness coaching, sensory experiences, therapy, and behavior support (e.g., reinforcement for engaging, or prompting). Individuals also have access to the center’s resources such as meditation rooms, sound baths, and massage chairs.
6. Trauma-Informed Practices:
- Integrate trauma-informed practices into all aspects of service delivery, including screening, assessment, intervention, and evaluation. These practices prioritize safety, trustworthiness, choice, and collaboration while minimizing the risk of re-traumatization.
7. Positive Supports:
- Incorporate positive supports, such as strengths-based case management, peer support, and community engagement into interventions, to enhance individuals' sense of belonging, agency, and social connectedness.
8. Self-Care for Individuals and Providers:
- Recognize the importance of self-care for both individuals and providers and then incorporate strategies to promote resilience, stress management, and work-life balance. Shared Wellness provides Yoga and sound and breath work for all employees free of charge during varying hours throughout the day. By prioritizing their own self-care, providers can better support and model their well-being to those they serve, to truly experience Shared Wellness.
Conclusion
A wellness-oriented approach to trauma-informed care, within the context of positive supports, offers a holistic and empowering framework for promoting healing, resilience, and well-being among individuals affected by trauma. By integrating principles of empowerment, collaboration, and self-care, practitioners can enhance the effectiveness and sustainability of interventions, while honoring individuals' strengths, dignity, and inherent capacity for growth and recovery. Moving forward, continued research, training, and implementation efforts are needed to advance this approach and ensure that all individuals have access to trauma-informed care that supports their holistic wellness and flourishment.
Setting events are places and/or inner spaces deeply embedded within cultural contexts, shaped by norms, values, and beliefs, that influence individuals' experiences and responses to trauma. Culturally competent trauma-informed care acknowledges the diversity of settings and recognizes the impact of culture on individuals' coping mechanisms, help-seeking behaviors, and healing practices.
Incorporating these places into trauma-informed care requires practitioners to adopt a comprehensive approach that considers the physical, social, and cultural dimensions of individuals' environments. This may involve conducting thorough assessments, collaborating with individuals to identify triggers and coping strategies, and creating supportive environments that prioritize safety, trust, and empowerment. By addressing setting events (i.e., places and/or inner spaces) within the context of trauma-informed care, practitioners can enhance the effectiveness and relevance of interventions, ultimately promoting healing, resilience, and holistic well-being for individuals affected by trauma, to improve their everyday lives.
References
1. Grandin, T. (2006). Thinking in pictures: And other reports from my life with autism (2nd ed.). Bloomsbury.
2. Porges, S. W. (2017). The pocket guide to the polyvagal theory: The transformative power of feeling safe (1st ed.). W. W Norton & Company.
3. Porges, S. W. Polyvagal Theory: A Primer (Chapter 4) from Porges SW & Dana D (2018). Clinical Applications of the Polyvagal Theory: The Emergence of Polyvagal-Informed Therapies. New York: WW Norton.
4. Iovannone, R., Anderson, C., & Scott, T. (2017). Understanding Setting Events: What They Are and How to Identify Them. Beyond Behavior, 26(3), 105-112. Understanding Setting Events Journal Article.
5. Kabat-Zinn, J. (2003)Mindfulness‐Based Interventions in Context: Past, Present, and Future Clinical Psychology Science and Practice 10(2):144 -156 DOI:10.1093/clipsy.bpg016.
6. Hastings, R., & Manikam, R. (2013). Mindfulness and Acceptance in Developmental Disabilities: Introduction to the Special Issue. Mindfulness, 4, 85-88. Mindfulness and Acceptance in Developmental Disabilities Journal Article.
7. Dale LP, Kolacz J, Mazmanyan J, Leon KG, Johonnot K, Bossemeyer Biernacki N and Porges SW (2022) Childhood Maltreatment Influences Autonomic Regulation and Mental Health in College Students. Front. Psychiatry 13:841749. doi: 10.3389/fpsyt.2022.841749.
Biographies
John Thvedt
Psychologist/CEO, Shared Support South
With over 40 years as a licensed psychologist in the Intellectual and Developmental Disabilities (IDD) field, John Thvedt has served as clinical director, behavior specialist, therapist, consultant and CEO for non-profit organizations across the US. He is the original co-founder of Shared Support Concepts, subsequently, Shared Support Inc., and currently, Shared Support South.
In his career John has ran group homes for the Jay Nolan Center for Autism as part of the de institutionalization movement in California in the early 80’s; provided behavior specialist services throughout southern California; consulted on the Southern Poverty law center’s review of state hospitals in Florida; and conducted mandated annual reviews of Pennhurst individual’s services following their return to community living after the closure of the institution.
Currently, John is dedicated to trauma informed program design that supports the clinical and everyday life needs of people with complex behavioral health needs and IDD through Shared Support South
Christine Martin
President, Shared Support South
With thirty-eight years of experience in the Intellectual and Developmental Disabilities (IDD) field, Chris Martin has held various roles spanning Direct Support, Management, and Executive positions. She is the original co-founder of Shared Support Concepts, subsequently establishing Shared Support Inc., and currently presides over Shared Support South.
Throughout her career, Chris has directed Supports Coordination units and served as the Executive Director for the Arc of Bucks County, where she spearheaded grant initiatives aimed at enhancing mental health services for individuals with IDD.
In her role as a consultant, Chris has coordinated and led Self-Determination initiatives across several Pennsylvania counties and Maryland. Chris has also supported teams to plan for individuals with a dual diagnosis transitioning from institutional settings into community living.
Currently, Chris is dedicated to trauma informed program design that supports the clinical and everyday life needs of people with complex behavioral health needs and IDD through Shared Support South.
Contact Information
John Thvedt - john.thvedt@sharedsupportsouth.org
Christine Martin- christine.martin@sharedsupportsouth.org